Question: My wife and I have a 7-year-old child with a serious physical and mental disability. I feel that I could be handling this situation much better than I am. My wife struggles at times but seems to be accepting what life has dealt us. Her resolve often leaves me feeling that I am not where I should be emotionally after living with his disability for this long. I often feel guilty and escape the pain I'm confronted with every time I see my son by putting in many hours at the office.
I even find myself resenting not having a child that's not “normal.” Do you have any suggestions?
Answer: There are many challenges a family or individual faces while raising a child with a disability. The grief that you may be feeling that your child is “not normal” is completely natural.
The grieving process a person goes through, once they learn that their child has a disability, is similar to the stages one experiences when dealing with the death of a loved one. Try not to compare yourself with your wife, as we all grieve differently and at different times.
Often, the more progressive the disability your child has correlates with multiple experiences of the grieving process. Try not to beat yourself up because of the way you're feeling. The reality is: You are where you are in the process.
If you haven't already, do as much research as possible on your child's disability. The more knowledge you have may lessen your anxieties about your the future.
Try joining a support group. Many people attend disability- specific conferences to meet others who have had similar experiences.
It also will be helpful for you to work with a therapist who can help you progress through whatever stage of grief you're in.
Finally, accept the fact that your family will not be like “typical” families. Find ways to enjoy time by yourself and alone with your spouse. Having a weekly date night will help you remain connected.
Brent Cooper, a licensed educational psychologist, has a private practice in Palm Desert and evaluates individuals of all ages for ADHD, learning disabilities and autism. Reach him at (760) 342-4900 or www.elpaseotesting.com